About a year ago I Found a lump in my throat behind my tonsil. I didn't really think much of it but decided to watch it. It seemed to have grown a tiny bit so I went to a ears, nose, and throat specialist. He said he just thought it was a bone spur (yes in the throat) or calcium build up. I thought while I was there I would tell him about this ear problem I have had since I was 14. I told him that when I heard base and deep sounds my ear would flutter like somebody was tapping on a microphone. He said he wanted to do a CT scan to check the lump in my throat and a MRI to check for a rare brain tumor that could cause ear flutters.
Monday I had my CT and MRI. ( The MRI was awful. I made them take me out once because it was so small. ) On Tuesday I got a call from the docs office saying my CT was fine and there was no serious mass to worry about in my neck or throat. That was a relief but then later that day I got a call from the Doctor himself. I knew that wasn't good. First he asked me how I was feeling. He said it in a way that made me think he was surprised I was feeling so well. He told me my MRI came back and I had multiple lesions in the bottom part of my brain and 9 spots that should calcium deposits. He told me they were going to schedule an appt. with a neurologist.
Yesterday I went to the neurologist and she was so cool. To bad the office is stupid. First they told me my appt. was at 1 30 then I show up and 120 and the lady tells Curtis and I that we were really early and had a long wait. I asked her if my appt was at 1 30 and she said, "No We tell people their appt is a half hour earlier so they will be on time." I was so mad. Seriously, what is the world coming to. Lets change the standard for stupid people that can't be on time a screw over the punctual people. Lame! She acted like I was stupid for being on time. I told her that was stupid and that I was there on time and that's what everyone should do. She didn't say anything. They also didn't have my actual MRI there. They just had a paper that described my MRI. Luckily my doctor is really good. She told me she doesn't think the lesions are cancer and doubts they are tumors. She also said she will do everything to avoid brain surgery. Those were all things I was most stressed about. She was with me for an hour or more straight. She asked me a million questions, tapped me with a bunch of things, and had me walking laps in a tiny room. It was so funny. Then I got blood taken and they took 14 tubes. She said she was thinking it was either lupus or MS. There is also a small chance that I had a bad infection that scared my brain when I was younger. That's what I am hoping for. My tests aren't even close to being over though. On monday we will hopefully see the actual MRI and then I have a spinal tap. That's where they take fluid right out of your spine. It will take 45 minutes and then I have to lay there for an hour after. I am excited for the reading time. I am a little sad about not being able to lift my babies for 24 hours straight though. I think I have another MRI coming up too but I don't know when. This is crazy and doesn't seem real. Hope that this turn out to be nothing. I will keep you all posted.
So sorry you have to go through all this. I will keep you in my prayers. I hope all this turns out to be nothing. It is kinda weird that your original appt. wasn't even for any of this.
ReplyDeleteOh my gosh!! That sounds really horrible...the whole thing! The anxiety of it all, the tests, the unknown, etc. All with a brand-new baby. I can't imagine. You seem to have such a positive attitude. I love the comments you give on my blog. It always cheers me up. I wish we all lived closer and could actually get together once in a while. I love that we have these blogs to keep us connected. Take care and you'll be in our prayers.
ReplyDeleteOh my gosh Katy-I am so sorry. When I was reading the unknown I just kept saying "please don't say it's cancer, please don't say it's cancer". This is really hard, and scary, and it's so hard to wonder how you're going to figure it all out, and all with a new baby. You are so brave. Spinal- yowsa. Why don't you get a blessing before they do that. I'll be praying for you, and keep us posted.
ReplyDeleteWow Katy! What a blessing that you happened to ask about the ringing in the ears to get this all figured out. It sounds like things are moving so incredibly fast from what you have written. I can't imagine all of this with a new baby and sweet little girl. I'll be thinking and praying for you and please keep us updated. We are all your extended support system.
ReplyDeleteoh wow, it's crazy how quickly one seemingly little thing can change into so many possibilities. It sounds like you are in good hands and that they are moving quickly to find what might be going on. We love you and will be thinking of and praying for you and your family during all of this!! Keep us updated.
ReplyDeleteOh man. I am so sorry. This sounds so awful and scary. You are sounding so positive-which is amazing! I will pray that it all goes well for you.
ReplyDelete