Yesterday I had my doctors appointment to go over all of my test results. I don't have cancer, lupus, or MS. What a relief. I was so afraid I was dying or something. This last week has been a way scary week for me. Right after I did my last post all of the spinal tap side effects set in. Ouch, I have never felt worse in my life. I felt so blessed to have my family close by to help me with the kids and finish all of my unpacking. I feel very blessed with timing as well. We had no idea when we moved that this was coming. If we wouldn't have just moved it would have been way harder for everyone to help out because they would have to drive for 30 to 45 minutes to get to me. I am so thankful God cares enough about us to work out all of the small details.
Now for the weird part. I guess when my spinal fluid came back they found something they have never seen before. Apparently I have Crystals in my spinal fluid. The lab called my Neurologist as soon as they found out to see if she had ever heard of that. She hasn't, nobody in the office has, and nobody in the lab as. They even called other labs and doctors to see they had. So either this is a really cool thing that I am capable of growing crystals or something is really wrong. I am relieved for now but they are doing a lot more tests. Now I have to see a eye doc and back to the ear doc to rule out 2 other possible diseases. Then if they rule those out back to the neurologists for another MRI and Spinal Tap in 6 months if my symptoms don't get bad first. If nothing shows up there I have to get a catheter in my thigh that goes all the way to my brain and I would have to be awake. Please pray that is doesn't come to that. That scares me and it cost 20 thousand dollars. I guess only time will tell.
Yikes! 20K......hope it doesn't come to that! Crystals eh? Maybe you're turning into a vampire:) tehehhe. Juuuuuuuust joking. Anyway- I guess it's good news that you don't have cancer or any other of that stuff- but very curious to what's up! Keeping you in my thoughts and prayers!
ReplyDeleteOh my gosh I was going to write YIKES! too and then I saw that Danielle wrote that! Man, ooo it just makes me shudder. I wonder what you have? A medical mystery. That is a lot to take in. It seems like you're handling it well.
ReplyDeleteMaybe you can be on one of those TLC or discovery shows on medical mysteries. I love that you still have humor in this. (The whole super cool crystal thing)I am glad to hear that the first test cleared serious symptoms. I hope the rest are just as relieving. Thanks for sharing all this!
ReplyDeleteI was totally going to write what Mindy wrote about the medical mystery shows thing. Crystals?? How wierd is that and the fact that nobody knows anything about it. Hopefully each test can be checked off the list from here on out with flying colors. Thank goodness you don't have any of the other things to this point. What a relief.
ReplyDeleteOh ya, I will post pictures of Breckin's room. right now it is a clothing disaster after I pulled everything out months ago. I need to get it all put back together.
Diddo on the TLC Medical Mysteries show - that's the first thing I thought of when I read your post. So far, it sounds like the other tests have come back good and maybe it's just some weird thing you've always had but never knew about? Hopefully there are no more major tests in the future (catheter to your brain?!!!)
ReplyDeleteWow. So relieved that you ruled out cancer, lupus and ms. I'm sorry you've had to go through so much pain after your spinal and with little kids!!! That's hard. Hopefully some genius doctor out there will figure out the crystal thing for you. So crazy.
ReplyDeleteoh my gosh- i'm so glad it's not those awful things- but I'm so sad that you have to continue to go through more pain in those check ups- I really ho0pe you don't have to do that thigh procedure. ok- I laughed though when you said- "so either it's really cool that I can make these crystals or..." crystals- what the heck?! keep us updated.
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